Today (9/24/18) marks Lanie’s 3rd consecutive week in the hospital. Lanie’s platelets were only 15 this morning; so they gave her more right before the bone marrow biopsy was done. I hate that she had to go through another one. I know those things are painful — well, I’ve read that they were painful. But Lanie said it was better than the last one because she wasn’t bleeding as much. We won’t get the test results for a couple days. Everything seems to be such a waiting game right now. We haven’t gotten the results from the lumbar puncture yet either. Those should hopefully be told to us in the morning when Dr. B comes back around.
Lanie seems to have had a headache most of the day. She didn’t eat much today. She ate plenty, just not as much as she has been. I was not able to be there when Dr. B did her rounds and saw Lanie, but I’ll definitely be there in the morning. I have so many questions. Lanie and Jordan both tried to explain what was said; both didn’t quite understand what the doctor was saying about the tumor markers. Something about they’re still at 400, but they came down from 2,000. And once they get to 200 or 250, if the tumors aren’t gone, do they stay in as benign? What’s the significance of the CT scan and the bone marrow biopsy if she has to go through chemo again and have an Ommaya placed in her head anyway?
Lanie seems almost completely better, especially compared to when she had such a rough time with the DIC, the horrible counts of her fibrinogen, hemoglobin, blasts count (cancerous white blood cells), and high prolactin issues. I know her hair is starting to fall out. Also, the bills have started to roll in. It’s just an awful thing for her to have seen. I don’t want any more bills brought to her at the hospital right now.
My precious daughter. I wish I could take her place.