Dr. Wemhoff, Neurosurgeon, and Kevin Lage, NP arrived at 9:44 a.m. Dr. Wemhoff was consulted about Lanie’s headache and backache. He had reviewed her MRIs and went over her symptoms again. Lanie said she’s noticed improvement. Her back wasn’t hurting at all right at that moment. It’s always the worst in the morning, but it wasn’t as bad at that particular point. When this first started, she discussed how originally the headache was the worse, but over a short period, her back pain became worse. She really can’t tilt her head much without her neck/upper back hurting. This morning, though, she could tilt her head forward with no pain. The doctor checked her entire body for spinal issues (i.e., reflexes and movement of all parts of the body), and she has no issues. There’s no numbness or tingling, nor electric shock feelings or burning down legs.
Imaging review. First, she’s feeling better, but he wants to see some progress in the right direction before trying to do anything risky. Dr. W explain he really couldn’t do anything to help her right now. Second, low platelets, high risk to go in and operate at all. Any sort of bleeding can cause major problems. An operation is just very risky; can’t see anything that needs to be done. They’ll be there if she needs them, but he believes nothing necessary now but lay flat.
10:00 a.m. Dr. Jason Macklis checked on Lanie this morning (Internal Med). He checked her rash, asked about her headache, and informed us that her liver function numbers came up a little. This is probably from the Tylenol she was given with her meds twice yesterday so it’s definitely eliminated now. Lanie feels her rash is getting better.
Oh, when Lanie was taken off the meropenem yesterday (since the rash wasn’t going away, they figured it was that), she was switched to tigecycline. I just do not like all these medications.
She’s about to eat waffles that Jordan made her. She’s very particular about her waffles and how they’re toasted 😊: Toaster settings on 1, then 1, then 2; and then add a pat of butter on each (real butter!).
The rest of the day was pretty laid back. Lanie’s back was hurting more than her head. She was laying flat pretty much all day. I cross-stitched the wolves I’m making her while we watched American Ninja Warrior episodes. We’ve been watching Fixer Upper with Chip and Joanna Gaines. I get totally engrossed in that show. She got up for a few minutes to eat. She’s just miserable laying in bed all day. 🙁 She kept wondering what she could do lying in bed. She can’t read because of her vision issues. She can’t sculpt her clay because she’ll get nauseous by her dizziness, then she’ll get frustrated. I wish I could do something more for her.
We hope to have a remission diagnosis with next bone marrow biopsy. The transplant team has sent Josh and Nina test kits as we’re getting ready for the next step of the stem cell transplant — or bone marrow transplant. They’re the same.